Day 1 is finally here (and gone)… it was an emotional day but we’re so happy to be getting started on this final round of chemo! It feels like it’s been forever since our journey started and we don’t remember what ‘normal’ looks like but we’ll find it again, one day.
For now we are just focusing on getting through these 7 days of chemo. The Cytarabine will run continuously and she will get a dose of Etoposide every day for the first three days. It runs for about an hour. The Cytarabine is the one that usually causes the fevers and yuckies so we’re praying they aren’t too bad this round.
She had a pretty good stay at home although it was a bit extended as her ANC had dropped. She was at 60 the day after Veteran’s Day so our time at home got lengthened. She ended up being over 2,000 less than a week later so she qualified for chemo and we got to skip a clinic visit before admissions.
While we were home we celebrated some birthdays.
We also had our Thanksgiving a little early as we’d planned to be back here before the actual holiday. We scaled back a lot to make things easier for everyone and we’ve decided that we are ok with celebrating it a little early every year to allow everyone to spend time elsewhere on the holiday, if they like.
We spent the day relaxing and made some ‘turkey pancakes’ for breakfast. Ana had found the idea on Pinterest so we thought it would be something fun to do. The kids really gobbled them up!
We also made a lot of bread, English muffins, pumpkin cinnamon rolls, and crackers. The sourdough bread recipe is pretty perfect now but the crackers still need some work.
There was lots of playing, eating, and arts and crafts while we were home. The kiddos also got caught up on some science experiments that they needed to do for school. Shyanne got to try on a dress that I had made for her big Sissy’s christening… we’ll try to set up a photo shoot when we get home.
It seems like our time home goes by way too quickly and before you know if we have to pack up and head back. Shyanne wanted to help with the packing this time around. I did pare down some things but it still feels like a lot as I try to bring her some toys and activities from home to keep her happy. We also pack at least two weeks of clothes to make sure we have plenty between washes as someone from home will come collect our dirty clothes to wash and then swap them out when they come back to visit.
We did manage to get most things crossed of our To-Do list which included getting the Christmas tree up.
Before we knew our day was here and we left home bright and early. Shyanne did really well until she realized that Sissy was going home without her.
Shyanne had a lot of visitors coming to see her and everyone was so excited that this is her last admission. They are all a little sad too, as are we. We will miss everyone but we’ll probably pass them here and there as Shyanne has a lot of specialists here at the hospital… plus they can always follow her journey here and on FB/Instagram.
Her chemo started a little while after Sissy had left. She just snuggled up with Momma and took a nice long nap.
Last night went pretty well other than her doing her low blood pressure thing which meant we had a lot of people in and out of the room. Then the doctor came in to check on her as well. He decided she was fine and we just kept trying to adjust her to a sitting position for vitals after that. (Shyanne’s blood pressure is quite a bit lower when she sleeps but this seems to be her normal.)
Please keep our family in your thoughts and prayers as this is so very hard on everyone in so many ways. We truly appreciate everyone and everything they’ve done and continue to do to support our precious family… it really does mean more than anyone could ever know! Thank you!