Today’s been another good and boring day full of a whole lot of nothing which is a good thing here. Shyanne has been in an especially good mood today and she’s been very social with everyone who has stopped by.
She has been eating pretty good and I’m hoping that continues as it’s so good to see her maintaining her weight. We are still waiting on her to go poop but she is just not as concerned with it as we are.
She’s just such a happy baby that sometimes it just doesn’t seem real that she’s is fighting such an ugly monster right now.
Her labs were good but her ANC is 100… not too much further to go before she bottoms out at 0. Then we wait for her counts to recover so we can go home. Her hemoglobin and platelets have also been dropping so we may be looking at some transfusions soon.
Our friend from Arts in Medicine came by and got our ceiling tile from yesterday. I’m not sure if it got put up but I’ll try to get a picture of it installed when I can.
She also brought me a canvas so I can paint another sloth for Shyanne’s ‘room’ at home… that’ll be something really special to have when she gets older.
I’ve been thinking a lot about what she’s been through and what she might have to face in the future and it scares me but I’ve also realized that I just need to give it to God and trust His plan for her.
Anyways I’m going to try to get a little sleep on the pullout… I’m sure I’ll end up snuggling her in the chair at some point though. I can’t catch up on all the sleep I’ve missed but I can try to get as well rested as possible because when her counts get really low she usually just wants Momma to snuggle her close.
We hope you all have a very good night!