Today was a better day than yesterday. I haven’t gotten her lab results yet but I’m praying her ANC is up.
The mucositis sores are now visible in her mouth and throat and she is miserable. They did get her set up on a continuous drip of morphine but we just had to get it bumped up a bit because she was in a lot of pain tonight.
Her nurses have been so sweet and doing their best to keep her as comfortable as possible.
She did have a pretty good day earlier today. She was eating much better than she had. Daddy came to see us and bring some clean clothes which we really needed.
Child Life also came in and I think everything is set for her birthday so watch for photos coming in a couple of days! Daddy also bought her a couple of outfits to choose from.
Daddy didn’t get to stay very long as he needed to make a grocery run for storm prep supplies. I’ve never been away from my kiddos during a hurricane and I always thought it would feel awful to not be with them during an emergency situation like this. Thankfully, Mr. Awesome has it covered and they were prepping some last minute things when we FaceTimed earlier.
I did get to talk to the kiddos and I know they are missing us just as much as we are missing them. This is hard and we had hoped to be home by now but she is where she needs to be right now… especially with the hurricane coming in.
Please keep us in your prayers as it will probably be another long night here and I’m praying we can keep her comfortable. I’m also praying specifically for her immune system to recover so her body can heal these awful sores.
Please stay safe and God Bless you all!
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