Chemo Round 2: Day 24: Another Rough Day

Today (Day 24) was the day we went home on the last round but we won’t be going home for at least a couple more days. We were prepared for a longer stay as they had told us that this round would be more intense but the homesickness is really setting in.

It’s been another rough day. She started out by throwing up around shift change. She got some Zofran and started to feel better.

We are so ready for her to feeling better. She started the morning (right at shift change which seems to be her routine) by throwing up. She had been a little restless but wasn’t really acting like she was sick…

She was already connected to the IV for her prophylactic antibiotics so they got some Zofran to run right after the antibiotics finished. Now she’s sleeping peacefully in my lap. My hopes for a shower are fading as she is clinging to me as she sleeps.

Her nurses have been so nice and keep coming to check up on her. Everyone can tell she isn’t feeling well at all. I found out that her ANC was back to zero last night so that’s probably part of why she isn’t feeling good. Right now her counts are what are keeping her here so we’re praying they come up soon so she feels better.

She did eat a good breakfast and lunch but dinner is just not going well.

I went downstairs for a few minutes after lunch. She had been doing well and was taking a nap but as soon as I walked in she wanted me to get her up.

She was fussy and didn’t want her cookie or any snacks. She just wanted to nurse and snuggle. I think her teeth are bothering her too.

Our dinner tray came and I thought she would want to eat. We had a sweet potato on the tray but she wasn’t interested in it at all.

She got some Tylenol when her nurse came to hook up her antibiotics and seems to have helped her a bit. I ate a bit of dinner but she wasn’t too happy with the way we were sitting so I closed up everything and snuggled up in the chair with her.

She started throwing up again and it seemed to make her feel better to get it out. She has been peeing good so she has been taking in enough milk to keep up with what she’s throwing up so far. Chemo is awful, watching your baby puke and puke is awful when you can’t do anything to help. I think all this vomiting probably played a part in the hernia she has as well. I’m just praying she feels better soon.

This is so hard to watch her going through this. I’m thankful that we have more good days than bad days but the bad days seem to be worse this time around.

They gave her some Zofran and she seems to be settled down for a bit. I put her in her crib so I could clean up our room… we had puke bags, used wipes, and lots of other stuff all over the place. I also took a bathroom break while she was playing.

I’m also going to try to pay a few bills from my phone because the bills don’t stop during a crisis… life continues on even though it feels like we are sitting still here.

It’s a surreal feeling to see everyone else going on about their lives and enjoying every day life, celebrating with family and friends, and just ‘getting back to normal’ while we are here just trying to get through the day without puking or spiking a fever… waiting for her counts to recover so we can have a few nights in our own beds. I know this is just a season and we’ll get past this but right now, in the midst of it, it’s exhausting and overwhelming at times… please pray for strength and endurance to get through this.

Enough of the gloomies… I’ll be giving her a CHG wipe down when they bring in her Bactrim. Then I’ll get her ready for bed and get cozy in the chair so we can snuggle together. Her puke bags and wipes will stay within arms reach… praying we don’t need them anymore today though.

Don’t worry… I’m not depressed or anything just being honest. Cancer sucks, chemo sucks, being away from our family sucks! This is a journey we didn’t choose but we’ll get through this one way or another with the love and support from our family and friends.

Please keep us in your thoughts and prayers! We love you all.

We hope everyone has a great Independence Day weekend!

By Susie @ Kirby's Kabin Blog

Susie is a slightly crazy, homeschooling, square dancing Momma with a houseful of babies (10 to be exact), and a whole lot of Jesus. She gave birth to seven of those babies (and she has the stretch marks ans scars to prove it) and then God chose her to be Momma to three more who she refers to as her 'Unexpected Blessings'. Having a large family means she has heard just about all of the large family jokes... you know like 'You know how that happens, right', or 'Don't you have a TV?'. Many people believe that she must be related to Mother Teresa but she insists she isn't anywhere close to a Saint although she does appreciate as many prayers as she can get sent her way. Even though four of her babies have flown the coop, her life stays really busy. Most days start out early with a cup of her favorite Dandy Morning Coffee and a quick Trim Healthy Mama breakfast before the kids get up and the crazy starts. She looks at every day as an adventure where the unexpected keeps her on her toes. In the rare moment that she finds a little quiet time, you can usually find her snuggled up with a good book, browsing a thrift store, sewing a new outfit, or getting a little 'Pin Happy' with To-Do projects on Pinterest. She is extremely passionate about her family, cooking, being a keeper of the home, and square dancing. She is also on a mission to help others to make healthier changes in their lives, one family at a time. She strives to live by the Proverbs 31 model but she also acknowledges that she is not perfect and is just a sinner saved by grace. Kirby's Kabin Blog began as a way to share her family's journey with family and friends as they've gone through so many life changes. After getting so many questions about parenting, homeschooling, and recipe requests she realized that she could really use her blog as a way to help others out there who may be struggling with their roles as a mother, especially the single mothers who may feel like they are all alone on their journey. This blog has become a journal of sorts and a way for her to help inspire and provide encouragement to others. She enjoys looking back over old posts to see how far they have come and to motivate her when times seem tough. On Kirby's Kabin Blog, she talks about their life's journey through the adoption process, how their faith in God got them through some difficult and challenging times, as well as the many ups and downs they have faced with a large family and special needs (ADHD, ODD, and Down's Syndrome to name a few). Susie also shares the products that they use in their home as well as tips and tricks that she uses to keep her family running as smoothly and efficiently as possible. Do you ever feel like your juggling so many things that you can't think straight? She has often felt the same way but has come up with some simple routines and schedules that help everyone to stay on track and I think they just might help you too! Under the 'Keeper of the Home' tab, you can find various tips, tricks, and hints to get your house up and running on autopilot. That's not been such an easy task for them since they downsized to a 600 ft square cabin but somehow they make it work and she loves sharing some of the helpful tips and tricks that they've learned along the way. One question they get a lot is about how they feed this army. It's not always an easy task and trying to eat healthily can get quite expensive so she is always looking for ways to save money and stick to their grocery budget. Under the 'Kirby's Kitchen' section they have a ton of their favorite recipes like Daddy Can't Wait Casserole, Hoe Cakes (one of the most viewed posts on the blog), freezer cooking, and meal plans along with their family's 'Trim Healthy Mama' plan ideas and successes. If you haven't heard of the 'Trim Healthy Mama' plan you should definitely check it out today! Sometimes eating healthy does mean she spends a little extra on groceries so she finds other areas to cut expenses. One way they have found is with their cleaning supplies and health products. She has always been concerned about the chemicals (Did you know that the average household contains about 62 toxic chemicals?) and toxins that are in many household cleaners so when she found a company where she could buy the majority of the green cleaning products that they use she jumped at the chance to become an Independent Sales Consultant with Norwex. Direct sales is really not her thing as she really is a bit of an introvert so if you look under the tab 'Susie's Chem Free Zone', you will find information about some of the natural products that they use around their house as they try to create a safe haven for their family. If you find that you are interested in the products, feel free to check out her personal web page ( or contact her to see if she can set up a 'virtual party' for you and your friends. Susie has been homeschooling for several years now and although she does not consider herself to be an expert but she has found a variety of products and services that have helped to make their homeschooling journey a unique experience. You can find links to these products under the 'Kirby's Kid's' tab. Susie and her kids have had a ton of fun reading through the Little House on the Prairie series and she has posted some of the unit studies that they have put together for the different books. The family has been trying to incorporate some of the old fashioned morals and values into their everyday lives. As if juggling kids, home, and a home business weren't enough, the family also enjoys square dancing twice a week or more. Mr. Awesome and his dad happen to be the only father/son caller duo in Florida and are pretty well known in these parts. She also manages a couple of other facebook and blog pages for a couple of the local square dance clubs. The 'Kirby's Korner' tab is where they post links to their square dancing activities which is one of the things they do as a family. Susie loves to dress up in her fancy dance outfits and thinks the fluffier the petticoat the better. She also loves to take selfies of her various square dance outfits and share them with others. Did I mention that she met Mr. Awesome through square dancing? You'll have to poke around the blog to see if you can find that story somewhere. If you just want to find a list of the affiliate/referral programs that the family works with you can click on the 'Affiliate Links' tab. These links help to support their blog, their family, and their homeschooling mission at no extra cost to you. If you like to chuckle about the crazy things kids do or the crazy things they do on a daily basis then you really should follow their blog. They also have accounts on Facebook (@kirbyskabinblog and @susieschemfreezone) as well as on Instagram (@kirbyzkorner and @susieschemfreezone). In July of 2020, amidst the COVID-19 pandemic, Susie and Shane welcomed their youngest daughter, Shyanne, into the family. Shyanne has a dual diagnosis of Down Syndrome and Dandy-Walker Malformation w/hydrocephalus. She has gained many followers and supporters from around the world who have joined together to be prayer warriors for this special little girl.

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