Well her blood counts came in this morning:
We’ve hit the low (Nadir) so now we just need to wait for her counts to recover. She does have a bit of a runny nose this morning but I’ll keep an eye on it.
She’s also been quite the stinker and really likes to scratch. I put socks on her hands last night but took them off this morning. I might try to get her nails cut and filed sometime today. I usually need to wait until she is asleep to do it.
The doctors rounded and we went over her plan if care. The team came in to meet Shyanne. Shyanne has a unique set of diagnosis so she is truly a one-of-a-kind case and they may never have the chance to see anyone quite like her again.
They also went over things we might need and they will be making sure Momma gets to eat as well. It’s not been a big deal to me as I have snacks and I eat off her tray some too. I also downstairs for food every so often but that can get quite expensive so I try not to go too often. Daddy and Sissy usually bring a meal when they come to visit as well.
We had a few other things we discussed. I really don’t like to complain and sometimes only mention things when directly asked about them. I’m just so very grateful for everything everyone is doing to take care of our little girl and how wonderful they have been with her.
She did have some OT today and we will keep working on a few things but she seems to be making some great progress.
Shyanne has been very talkative today and she is interested in my phone as she loves FaceTime!
Here is our one Instagram post from today:
‘She’s been very talkative today but I haven’t been able to catch it on video.
She also has a couple of teeth just about ready to pop through.
She has been feeling much better today even though her ANC is at 0… now we wait until it comes back up to 500 before we can talk about coming home.’
It was a pretty quiet day and we are hoping for a quiet night as well!
We thank you all for your love, prayers, and support!