It’s been a good day today. Shyanne slept all night long! We both slept through her getting her eye drops last night… she was snuggled in my lap and we were both passed out from being so exhausted.
Shyanne had bloodwork done today to check her counts and see how well the medication is working. They’ll also be checking her kidney function and some other things too. Her blood cultures have been negative so far so that’s a great thing.
She’s been eating ok but not quite as well as usual. She’ll slowly get her appetite back but she’ll be starting her medication again soon though.
She did play for a while before lunch. Sissy came to visit after lunch and Shyanne enjoyed snuggling with her.
Sissy brought us some things from home, including our ‘lost’ bag. I was so glad to get it because my glasses and contact supplies were in it. There was also some mustard seed jewelry and keychains I had ordered from Faith Bracelet Co. They aren’t the fanciest of items but I really loved the idea and they were having a good sale right now.
Sissy brought me some materials and I’m going to try to make some simple central line vests for Shyanne. I finished one baby blanket and hat yesterday and have another to work on.
Shyanne’s beanie wig also arrived from The Magic Yarn Project. It is so adorable and we are so grateful that someone took the time to make this for her.
Here’s another cute picture of her:
She loves her princess hair and we put it on during her FaceTime call with Daddy. She had been begging to see him but then she had her pouty face on almost the whole time. She smiled when her nurse came in but went straight back to pouty face when she left.
It’s almost 10:00 and she’s still wide awake and trying to help me type. She’s also making my arm sore as she practices her sit-ups in my lap and then throws herself backwards on my arm… such a stinker!
It’s been good seeing her so happy and full of energy today. I’m hoping we have a few more good days before her counts start dropping and she gets more medications.
It’s mentally, physically, and emotionally draining to watch her go through this and not be able to make her feel better. It’s frustrating too when they give her medications to help but they aren’t enough to take away or prevent all the nasty side effects. We need all the good days, like today, that we can get.
For now, I’m going to enjoy these snuggles and thank God for all the smiles today. I’m going to say good night. Thank you all for your love and support!