Bone Marrow Biopsy #2

I meant to post this last night but Shyanne was not having it as she wanted all of the attention.

Yesterday was a bit anxious to me. Bringing her back to the hospital really makes me anxious as I’m constantly wondering if I’ve overlooked any important signs or if she might spike a fever while we’re here and I wonder if we’ll get to go home as planned. I’ve packed most of our stuff for our next admission so we are ready to go ‘just in case’.

Shyanne wasn’t too happy with not being able to eat yesterday morning and she kept signing for milk. She also kept pulling at my shirt when close enough. I felt bad but I knew we needed to get the bone marrow biopsy done so we can see how well the first round of chemo went.

Before heading down to pre-op we went upstairs to the clinic. The nurses changed out her central line dressing and everything so we will be good until next Thursday. All I need to do is flush her lines everyday. I have also continued her CHG baths daily as they help to keep infections away.

After finishing up there the nurses showed me the way to ‘walk through the floor’ to the children’s elevators so I could get to pre-op. It wasn’t really hard and I ended up right where the NICU was so I think I can remember the way now.

Once we were in pre-op, she fell asleep on my lap as we waited. She wanted to snuggle with Slothie and her soft blankie. I believe this was the seventh time I’ve handed our baby over to the OR team and trusted them to bring her back safely… it doesn’t get any easier.

They took her back a few minutes before 10:00 and I went to the waiting room with a few other people. Some days people are laughing and chatting or the TV is on but yesterday it was very quiet with only the chatting of nurses and staff passing by and the clicking and humming of the automatic doors to break the silence.

It didn’t take very long at all for the doctor to call and say they were finished. Then they called to say that she was back in PACU.

She was sleeping peacefully when I got back there. We let her sleep for about an hour and a half before trying to wake her. When she woke up she had to check her fingers and toes before she remembered that she had been hungry.

Once she had some milk and a few snacks she was ready to go home. It didn’t take long before she was discharged and we were on our way home in the pouring rain.

She was starving again when we got home so she had some more to eat. I thought she might take a nap but that wasn’t her plan at all. She did play for a bit before getting really cranky.

I sat with her for a bit and she kept taking little naps but would wake up as soon as I laid her down. We ended up laying in the bed and falling asleep together until daddy came home. She felt so much better after her nap.

After daddy came home she played and snuggled with him for a bit. Then we shared some ice cream before bed The cold helped soothe her sore throat and she thought it was a pretty good treat.

I let her sleep until she woke on her own around 8:00ish. Today she starts her prophylactic antibiotics through the weekend. She is ready and rearing to go right now so I better finish this up and get her fed.

After breakfast I’m going to see if she’ll play so I can pay bills and work on school stuff. We hope you all have a wonderful weekend!

By Susie @ Kirby's Kabin Blog

Susie is a slightly crazy, homeschooling, square dancing Momma with a houseful of babies (10 to be exact), and a whole lot of Jesus. She gave birth to seven of those babies (and she has the stretch marks ans scars to prove it) and then God chose her to be Momma to three more who she refers to as her 'Unexpected Blessings'. Having a large family means she has heard just about all of the large family jokes... you know like 'You know how that happens, right', or 'Don't you have a TV?'. Many people believe that she must be related to Mother Teresa but she insists she isn't anywhere close to a Saint although she does appreciate as many prayers as she can get sent her way. Even though four of her babies have flown the coop, her life stays really busy. Most days start out early with a cup of her favorite Dandy Morning Coffee and a quick Trim Healthy Mama breakfast before the kids get up and the crazy starts. She looks at every day as an adventure where the unexpected keeps her on her toes. In the rare moment that she finds a little quiet time, you can usually find her snuggled up with a good book, browsing a thrift store, sewing a new outfit, or getting a little 'Pin Happy' with To-Do projects on Pinterest. She is extremely passionate about her family, cooking, being a keeper of the home, and square dancing. She is also on a mission to help others to make healthier changes in their lives, one family at a time. She strives to live by the Proverbs 31 model but she also acknowledges that she is not perfect and is just a sinner saved by grace. Kirby's Kabin Blog began as a way to share her family's journey with family and friends as they've gone through so many life changes. After getting so many questions about parenting, homeschooling, and recipe requests she realized that she could really use her blog as a way to help others out there who may be struggling with their roles as a mother, especially the single mothers who may feel like they are all alone on their journey. This blog has become a journal of sorts and a way for her to help inspire and provide encouragement to others. She enjoys looking back over old posts to see how far they have come and to motivate her when times seem tough. On Kirby's Kabin Blog, she talks about their life's journey through the adoption process, how their faith in God got them through some difficult and challenging times, as well as the many ups and downs they have faced with a large family and special needs (ADHD, ODD, and Down's Syndrome to name a few). Susie also shares the products that they use in their home as well as tips and tricks that she uses to keep her family running as smoothly and efficiently as possible. Do you ever feel like your juggling so many things that you can't think straight? She has often felt the same way but has come up with some simple routines and schedules that help everyone to stay on track and I think they just might help you too! Under the 'Keeper of the Home' tab, you can find various tips, tricks, and hints to get your house up and running on autopilot. That's not been such an easy task for them since they downsized to a 600 ft square cabin but somehow they make it work and she loves sharing some of the helpful tips and tricks that they've learned along the way. One question they get a lot is about how they feed this army. It's not always an easy task and trying to eat healthily can get quite expensive so she is always looking for ways to save money and stick to their grocery budget. Under the 'Kirby's Kitchen' section they have a ton of their favorite recipes like Daddy Can't Wait Casserole, Hoe Cakes (one of the most viewed posts on the blog), freezer cooking, and meal plans along with their family's 'Trim Healthy Mama' plan ideas and successes. If you haven't heard of the 'Trim Healthy Mama' plan you should definitely check it out today! Sometimes eating healthy does mean she spends a little extra on groceries so she finds other areas to cut expenses. One way they have found is with their cleaning supplies and health products. She has always been concerned about the chemicals (Did you know that the average household contains about 62 toxic chemicals?) and toxins that are in many household cleaners so when she found a company where she could buy the majority of the green cleaning products that they use she jumped at the chance to become an Independent Sales Consultant with Norwex. Direct sales is really not her thing as she really is a bit of an introvert so if you look under the tab 'Susie's Chem Free Zone', you will find information about some of the natural products that they use around their house as they try to create a safe haven for their family. If you find that you are interested in the products, feel free to check out her personal web page (susiekirby.norwex.biz) or contact her to see if she can set up a 'virtual party' for you and your friends. Susie has been homeschooling for several years now and although she does not consider herself to be an expert but she has found a variety of products and services that have helped to make their homeschooling journey a unique experience. You can find links to these products under the 'Kirby's Kid's' tab. Susie and her kids have had a ton of fun reading through the Little House on the Prairie series and she has posted some of the unit studies that they have put together for the different books. The family has been trying to incorporate some of the old fashioned morals and values into their everyday lives. As if juggling kids, home, and a home business weren't enough, the family also enjoys square dancing twice a week or more. Mr. Awesome and his dad happen to be the only father/son caller duo in Florida and are pretty well known in these parts. She also manages a couple of other facebook and blog pages for a couple of the local square dance clubs. The 'Kirby's Korner' tab is where they post links to their square dancing activities which is one of the things they do as a family. Susie loves to dress up in her fancy dance outfits and thinks the fluffier the petticoat the better. She also loves to take selfies of her various square dance outfits and share them with others. Did I mention that she met Mr. Awesome through square dancing? You'll have to poke around the blog to see if you can find that story somewhere. If you just want to find a list of the affiliate/referral programs that the family works with you can click on the 'Affiliate Links' tab. These links help to support their blog, their family, and their homeschooling mission at no extra cost to you. If you like to chuckle about the crazy things kids do or the crazy things they do on a daily basis then you really should follow their blog. They also have accounts on Facebook (@kirbyskabinblog and @susieschemfreezone) as well as on Instagram (@kirbyzkorner and @susieschemfreezone). In July of 2020, amidst the COVID-19 pandemic, Susie and Shane welcomed their youngest daughter, Shyanne, into the family. Shyanne has a dual diagnosis of Down Syndrome and Dandy-Walker Malformation w/hydrocephalus. She has gained many followers and supporters from around the world who have joined together to be prayer warriors for this special little girl.

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