I meant to post this last night but Shyanne was not having it as she wanted all of the attention.
Yesterday was a bit anxious to me. Bringing her back to the hospital really makes me anxious as I’m constantly wondering if I’ve overlooked any important signs or if she might spike a fever while we’re here and I wonder if we’ll get to go home as planned. I’ve packed most of our stuff for our next admission so we are ready to go ‘just in case’.
Shyanne wasn’t too happy with not being able to eat yesterday morning and she kept signing for milk. She also kept pulling at my shirt when close enough. I felt bad but I knew we needed to get the bone marrow biopsy done so we can see how well the first round of chemo went.
Before heading down to pre-op we went upstairs to the clinic. The nurses changed out her central line dressing and everything so we will be good until next Thursday. All I need to do is flush her lines everyday. I have also continued her CHG baths daily as they help to keep infections away.
After finishing up there the nurses showed me the way to ‘walk through the floor’ to the children’s elevators so I could get to pre-op. It wasn’t really hard and I ended up right where the NICU was so I think I can remember the way now.
Once we were in pre-op, she fell asleep on my lap as we waited. She wanted to snuggle with Slothie and her soft blankie. I believe this was the seventh time I’ve handed our baby over to the OR team and trusted them to bring her back safely… it doesn’t get any easier.
They took her back a few minutes before 10:00 and I went to the waiting room with a few other people. Some days people are laughing and chatting or the TV is on but yesterday it was very quiet with only the chatting of nurses and staff passing by and the clicking and humming of the automatic doors to break the silence.
It didn’t take very long at all for the doctor to call and say they were finished. Then they called to say that she was back in PACU.
She was sleeping peacefully when I got back there. We let her sleep for about an hour and a half before trying to wake her. When she woke up she had to check her fingers and toes before she remembered that she had been hungry.
Once she had some milk and a few snacks she was ready to go home. It didn’t take long before she was discharged and we were on our way home in the pouring rain.
She was starving again when we got home so she had some more to eat. I thought she might take a nap but that wasn’t her plan at all. She did play for a bit before getting really cranky.
I sat with her for a bit and she kept taking little naps but would wake up as soon as I laid her down. We ended up laying in the bed and falling asleep together until daddy came home. She felt so much better after her nap.
After daddy came home she played and snuggled with him for a bit. Then we shared some ice cream before bed The cold helped soothe her sore throat and she thought it was a pretty good treat.
I let her sleep until she woke on her own around 8:00ish. Today she starts her prophylactic antibiotics through the weekend. She is ready and rearing to go right now so I better finish this up and get her fed.
After breakfast I’m going to see if she’ll play so I can pay bills and work on school stuff. We hope you all have a wonderful weekend!