Chemo Round 1: Day 24: Going Home

So it’s been hard not to say anything yesterday but I didn’t want to jinx anything. Things have been up in the air a bit because of her numbers going up and down. Then there was an issue of whether we could get her meds filled as they needed a prior authorization… so much suspense!

11:00 pm

A lot has happened since I started this post earlier. We finally got the ok to go home with specific instructions about keeping Shyanne safe and what to do if she isn’t feeling well.

We were afraid that one of medications was going to hold us up but they were able to get an alternative medication. The doctor also apologized as he said we won’t be home very long. We do have a clinic appointment on Wednesday and then another bone marrow biopsy scheduled for Thursday.

She was a little confused at first but when she realized that we were leaving she was so excited. She kept looking at Sissy and me and just smiling so big! She was doing a happy dance all the way home.

Shyanne has transitioned home so well. She immediately began eating better and has enjoyed playing in her ‘office’ with her old toys and some new ones.

She has also been enjoying lots of Daddy snuggles. We can all tell that she is loving being at home.

It’s been a bit busy since we got home. I had originally said I just wanted to sleep for a day when we came home… I should’ve stuck to that plan. I’ve been busy opening packages/sorting things and trying to unpack. It’s been such a blessing to see how many people/organizations have sent things for Shyanne and our family. We appreciate you all very much. (I’ll post some pics at the bottom of the page.)

I was trying to sort out the dates and times of our upcoming appointments when I got a call from the doctor. Apparently there had been a mixup with her dosage of one medication which I had already given… luckily it was nothing serious but I made changes to the label so it would be right.

He also said he would find out about her appointment times and get back to me. If I don’t hear from him by Tuesday, I will call the clinic and get it all sorted.

It’s been a pretty good day today and we are so happy to home. we still have some things to tidy up and sort out. It feels like I might just be unpacking to start packing again to go but we’ll manage. One bonus from being so busy is that my legs aren’t nearly as swollen as they have been.

I’ll try to post some printable links to some blank signs at some point.

One last thing before I go. I know we will have lots of people wanting to visit but we do have a lot of precautions for our visitors to follow. We need everyone’s help to keep our warrior healthy while she is home.

The kids have had a hard time with these new precautions as our bedroom is Shyanne’s ‘safe room’. No one is allowed in without asking and they must wash/sanitize their hands and wear a mask. We have set up sanitizers and masks at every entrance door and at our bedroom door.

I’m going to go for now but we want to sincerely thank each and every one of you for supporting us with your love and prayers. It means so much that so many people care about our little girl and our family!

Many times over the past few weeks I’ve thought about how blessed I am. There have been times in the past where I’ve passed on different opportunities because I didn’t have anyone I could trust to watch my kiddos for me. If this had happened during those periods of my life, I really don’t know how I could’ve handled it. I’m just so very thankful for our ‘village’ and the support they given us over the past year. It really means more to me than I could ever put into words.

Below are the other pictures I promised. I will try to work on a page with links to the amazing resources we have been in contact with but you can check out our Instagram page for more information.

By Susie @ Kirby's Kabin Blog

Susie is a slightly crazy, homeschooling, square dancing Momma with a houseful of babies (10 to be exact), and a whole lot of Jesus. She gave birth to seven of those babies (and she has the stretch marks ans scars to prove it) and then God chose her to be Momma to three more who she refers to as her 'Unexpected Blessings'. Having a large family means she has heard just about all of the large family jokes... you know like 'You know how that happens, right', or 'Don't you have a TV?'. Many people believe that she must be related to Mother Teresa but she insists she isn't anywhere close to a Saint although she does appreciate as many prayers as she can get sent her way. Even though four of her babies have flown the coop, her life stays really busy. Most days start out early with a cup of her favorite Dandy Morning Coffee and a quick Trim Healthy Mama breakfast before the kids get up and the crazy starts. She looks at every day as an adventure where the unexpected keeps her on her toes. In the rare moment that she finds a little quiet time, you can usually find her snuggled up with a good book, browsing a thrift store, sewing a new outfit, or getting a little 'Pin Happy' with To-Do projects on Pinterest. She is extremely passionate about her family, cooking, being a keeper of the home, and square dancing. She is also on a mission to help others to make healthier changes in their lives, one family at a time. She strives to live by the Proverbs 31 model but she also acknowledges that she is not perfect and is just a sinner saved by grace. Kirby's Kabin Blog began as a way to share her family's journey with family and friends as they've gone through so many life changes. After getting so many questions about parenting, homeschooling, and recipe requests she realized that she could really use her blog as a way to help others out there who may be struggling with their roles as a mother, especially the single mothers who may feel like they are all alone on their journey. This blog has become a journal of sorts and a way for her to help inspire and provide encouragement to others. She enjoys looking back over old posts to see how far they have come and to motivate her when times seem tough. On Kirby's Kabin Blog, she talks about their life's journey through the adoption process, how their faith in God got them through some difficult and challenging times, as well as the many ups and downs they have faced with a large family and special needs (ADHD, ODD, and Down's Syndrome to name a few). Susie also shares the products that they use in their home as well as tips and tricks that she uses to keep her family running as smoothly and efficiently as possible. Do you ever feel like your juggling so many things that you can't think straight? She has often felt the same way but has come up with some simple routines and schedules that help everyone to stay on track and I think they just might help you too! Under the 'Keeper of the Home' tab, you can find various tips, tricks, and hints to get your house up and running on autopilot. That's not been such an easy task for them since they downsized to a 600 ft square cabin but somehow they make it work and she loves sharing some of the helpful tips and tricks that they've learned along the way. One question they get a lot is about how they feed this army. It's not always an easy task and trying to eat healthily can get quite expensive so she is always looking for ways to save money and stick to their grocery budget. Under the 'Kirby's Kitchen' section they have a ton of their favorite recipes like Daddy Can't Wait Casserole, Hoe Cakes (one of the most viewed posts on the blog), freezer cooking, and meal plans along with their family's 'Trim Healthy Mama' plan ideas and successes. If you haven't heard of the 'Trim Healthy Mama' plan you should definitely check it out today! Sometimes eating healthy does mean she spends a little extra on groceries so she finds other areas to cut expenses. One way they have found is with their cleaning supplies and health products. She has always been concerned about the chemicals (Did you know that the average household contains about 62 toxic chemicals?) and toxins that are in many household cleaners so when she found a company where she could buy the majority of the green cleaning products that they use she jumped at the chance to become an Independent Sales Consultant with Norwex. Direct sales is really not her thing as she really is a bit of an introvert so if you look under the tab 'Susie's Chem Free Zone', you will find information about some of the natural products that they use around their house as they try to create a safe haven for their family. If you find that you are interested in the products, feel free to check out her personal web page ( or contact her to see if she can set up a 'virtual party' for you and your friends. Susie has been homeschooling for several years now and although she does not consider herself to be an expert but she has found a variety of products and services that have helped to make their homeschooling journey a unique experience. You can find links to these products under the 'Kirby's Kid's' tab. Susie and her kids have had a ton of fun reading through the Little House on the Prairie series and she has posted some of the unit studies that they have put together for the different books. The family has been trying to incorporate some of the old fashioned morals and values into their everyday lives. As if juggling kids, home, and a home business weren't enough, the family also enjoys square dancing twice a week or more. Mr. Awesome and his dad happen to be the only father/son caller duo in Florida and are pretty well known in these parts. She also manages a couple of other facebook and blog pages for a couple of the local square dance clubs. The 'Kirby's Korner' tab is where they post links to their square dancing activities which is one of the things they do as a family. Susie loves to dress up in her fancy dance outfits and thinks the fluffier the petticoat the better. She also loves to take selfies of her various square dance outfits and share them with others. Did I mention that she met Mr. Awesome through square dancing? You'll have to poke around the blog to see if you can find that story somewhere. If you just want to find a list of the affiliate/referral programs that the family works with you can click on the 'Affiliate Links' tab. These links help to support their blog, their family, and their homeschooling mission at no extra cost to you. If you like to chuckle about the crazy things kids do or the crazy things they do on a daily basis then you really should follow their blog. They also have accounts on Facebook (@kirbyskabinblog and @susieschemfreezone) as well as on Instagram (@kirbyzkorner and @susieschemfreezone). In July of 2020, amidst the COVID-19 pandemic, Susie and Shane welcomed their youngest daughter, Shyanne, into the family. Shyanne has a dual diagnosis of Down Syndrome and Dandy-Walker Malformation w/hydrocephalus. She has gained many followers and supporters from around the world who have joined together to be prayer warriors for this special little girl.

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