It’s 10:00 and we’ve had quite a busy morning already with OT coming by a little bit ago. They were pretty impressed with her progress since last week and she loves showing off. It was a good distraction for her while she was hooked up to the IV as well.
At the rate she is going she will be crawling soon. I also found out that there is a milestones chart made for babies with Down Syndrome. Maybe I knew this but forgot? Anyway here’s the link if anyone is interested:
She was up early again this morning… I heard her when I was in the shower. I’ll be so glad to be home and maybe take a nice long bath. I need to put my feet up and relax because these ankles are so swollen.
I’m not complaining because I know this is nothing compared to what Shyanne is going through. She is such a cutie and she is so strong… she does everything with a smile and she inspires me to be a better person.
We are waiting on the doctors to round right now and I’m praying they can give us a better idea of when we might be looking at discharge. I’m trying to be patient but it’s getting hard even though the end to this stay is in sight.
I need to practice a bit more with the line flush and then do it with the nurses a couple more times before we go home. I also need to get the calendar for the next month or two so maybe we can better prepare for our next stay.
I’m getting excited to see everyone soon even though I know there won’t be a whole lot of rest going on as there are a pile of packages and stacks of mail to handle. There will be even more packages before we get home as well because of all the school stuff I ordered… it’s going to be great to spend time with everyone though.
Well the doctors rounded just after I finished writing earlier this morning. They are thinking she is on the road to count recovery but they want to see some increases in the next few days… a little encouragement that makes me feel so much better!
Shyanne’s been a bit of a stinker today. She refuses to nap unless I’m holding her so I can’t get anything done.
We did have a volunteer come by this afternoon so I went downstairs to grab a Frosticcino, junior Frosty, and a sugar cookie. Shyanne wasn’t very happy when I came back but she cheered up when she saw what I had.
She was hooked up to her IV for a while so the snack helped to distract her a bit. She also ‘read’ a few books and played for a bit.
She didn’t eat a really good dinner… possibly because she had such a big snack? After dinner I gave her a CHG bath and brushed her teeth. I changed her clothes as the PAC changed her bed linens and then I laid her in bed to watch some ‘Signing Times’ but she is fussing now so I’m guessing she wants some milk.
I finally got little miss to go to sleep. We FaceTimed with everyone for a bit and it was good to see and talk to them. It was also nice to see them having fun.
We also got some great news about her bloodwork… it looks like it’s on the right path to get us home. I’m afraid to get my hopes too high but here are the results from today:
WBC 3.4 (down from 3.5)
HGB 8.3 (up from 8.2)
HCT 23.3 (up from 23.8)
PLT 144 (up from 100)
ANC 273 (up from 110)
Once again we thank you all for your continued support on this journey and we pray that you never have to face this monster in your own lives!
We know of a few close friends/family who are or have been affected by cancer recently and we ask that you keep them in your thoughts and prayers as well.