Happy news this morning as her ANC is 100… it’s been a 0 for a few days now. She didn’t need any transfusions last night either… I stayed up for a bit waiting but finally decided I’d try to get some sleep.
I only got up once during the night to feed her as she only woke up after her IV antibiotics. She was up bright and early this morning… I heard her singing while I was in the shower.
She made up for her missed feedings before breakfast. When her nurse came in she told us the good news and went to get the rest of the numbers for me as our sheet hadn’t been updated.
Her bloodwork last night was:
WBC 2.8 (up from 1.9), HGB 8.2 (down from 8.3), HCT 23.6 (same), PLT 49 (down from 52), ANC 100 (up from 0)
This is all great news and means we are making big steps towards coming home. I’ll be starting line training today so I can get comfortable with caring for her while she is at home.
She knows Mommy is excited about something and she keeps laughing and dancing. She ate a good breakfast and is now playing in her bed. I’m going to get busy putting away our clothes from yesterday and sorting through some things so we can send some stuff home whenever we get visitors.
She just finished up with therapy and she’s all tuckered out but she did really well. She actually took a nap earlier this morning but she’s been refusing to nap lately.
I’ve also been busy practicing on flushing lines. It’s not too complicated but you want to keep everything clean. I’ll get to try with supervision around 5:00 or so when she finishes up her IV antibiotics. If I’m not comfortable our nurse caseworker with her insurance said we could see about getting a home health nurse to come out and take care of it… I guess we’ll see how things go over the next day or so.
The doctors just rounded and said that she is doing very well with this block. We just need to keep doing what we are doing to get her through this block and the following blocks.
The goal ANC is around 500 but we also need to have a trend showing it increasing. It’s too early to say if we are on the way to coming home as it isn’t completely uncommon to see the numbers go back down again before coming back up… so please keep praying that she continues to improve.
Whew! Just completed my first flush and it went well… of course it’s always easier when you have a professional right there with you. I’ll keep doing them as often as they let me. We’ll only need to do them once a day when we get home but the extra practice right now won’t hurt. Once her levels are up we will be ready to go home… yay
Shyanne finally took a decent nap this afternoon. I took advantage of the time and got some computer stuff done… somehow a couple of bills hadn’t went through earlier this month so I took care of them. Late charges are no fun but I’ll try to do a better job keeping up with them next month… life doesn’t stop just because you’re going through a crisis.
I also ordered some things we needed for the house and then handled a few phone calls that I needed to make.
I was also researching some school stuff to make this next semester/year a little bit easier but I haven’t made any final decisions yet. I’ll need to look over the online lessons and try to put something easy together.
I read something earlier about some advice from a doctor when receiving a cancer diagnosis… I so HATE that word –CANCER. It was something to the effect that we only have a small amount of energy so we shouldn’t be wasting it on worrying about what might happen or why this happened. Instead we need to focus on today… getting up and doing what NEEDS to be done. They also said to make sure to have fun and make memories every day… I’m going to try to make this my motto from now on because life is too short and we aren’t promised a tomorrow!
Shyanne has been learning so many new things like kissy noises and blowing kisses. She says ‘ok’ and ‘yeah’ now as well as trying to shake her head ‘no’. She has everybody enamored with her because of her smile and her sweet personality. She truly is my hero because she takes everything in stride and keeps a smile on her little face.
We had a good visit with Sissy and it seemed like she had to leave too soon but hopefully we’ll be home soon enough. Shyanne had some bloodwork done earlier and now we are just waiting for the results.
I’m going to sit up for a bit longer and then try to get a little sleep as the princess is already asleep with George… Slothie was in need of some mending so she stayed home and let George come in her place for a bit.
Thank you all again for your continued prayers and support … we definitely need them to get through this journey that we have found ourselves on.