Chemo Round 1: Day 9: Baby’s First Hair Cut

We hope everyone else had as good a night as we had… no multiple wakings, other than feedings, and no more throwing up! Yay!

Today is dressing change day so she got to take a tub bath in the inflatable tub I ordered last week. She had so much fun… I didn’t get a picture but trust me she was totally relaxing and enjoying the water. It was nice to see her have so much fun doing something ‘normal’.

Right now she is playing in her crib… she really enjoys the light up toys hanging on the side. She also has her Signing Time DVD going so sometimes she is watching that and sometimes she is just playing.

I’ve noticed some hair on her pillow and sheets this morning… it makes me want to cry even though I’ve known it was going to happen. I know it’s just hair and it’ll grow back but it’s still really sad to me.

I’ve pulled it into a little spout and when Daddy comes I might get him to snip it off so we can save it. I’ve seen some cute ideas but I might just stick it in her little box at home.

10:00

Wow! Shyanne was a superstar at dressing change time! I held her in my lap and kept her arms tucked so she couldn’t help. She didn’t fuss or cry at all! We were all so impressed.

I just updated my Medela app… I used it to help me keep track of pumping and feedings during our early days. I downloaded it again because we were having some discrepancies with her intake/output.

I add everything to the app and write it on the board so if the doctors have a question I can pull it up easier. I just wish it had a blank ‘note’ tracking so I could easily record things like baths, tooth brushing, vomiting, etc that needs to be noted in the chart or something I might need to jot down for quick reference.

I go ahead and start a note for nursing when we start. When she finishes I go back and edit the length of time.

You can sort the data so many ways. Even though it wasn’t designed for this exact purpose it makes things so much easier! The app is FREE too so that’s great!

Her weight was 7.22 kg today (after a big poop) so it is going up and the doctors think it will level back off before she starts gaining again. Her appetite is getting a little better too.

4:30

Shyanne was so excited to see Daddy today. I was pretty happy to see him too and very happy that he brought our clean clothes as I had nothing clean left to wear!

She ate part of a Frosty, some soup and crackers, and later some yogurt. She was laughing and cutting up the whole time he was here.

After he left I set up her tub with her balls and let her play… she had so much fun!

We did give her a little hair cut and I saved the lock of hair for later as I’m still not sure what I’ll be doing with it.

Other than that it’s been a pretty quiet day… I wish we could be at home as today is Mr. Jacob’s birthday. We did have an early, impromptu birthday party for him before we left but I’ve always had my kiddos with me on their birthdays… it just makes me sad that we are missing today.

I also hate that I didn’t get to make him the Minecraft sword cake that he had asked for… I had already bought the square cupcake pans to use as well!

I did add some carrot cake mix and cream cheese icing to the grocery pickup for yesterday. He has requested that for his birthday but settled for chocolate as they were out of carrot cake that day.

I’ve been watching HGTV a lot as I love all these DIY/home makeover shows. I’ve gotten some great ideas for our house but it is a bit frustrating as well. We’ve had so many issues with the house that we shouldn’t have and the dealer doesn’t seem to care. For now our focus is on Shyanne and our family and later we will find the time to deal with the house.

9:00

Shyanne has done pretty well today and eaten pretty good. She started coughing after dinner and puked up a little bit of sweet potato but nothing major.

Mr. Awesome FaceTimed me… he was looking for hot dogs but we didn’t find them. I got to see the kiddos and Jacob was so sad when I told him we’d be here a bit longer. It was all I could do not to cry.

I asked everyone to give him a big hug from me… I know just how he feels. I’ve never been away from them for this long and thinking about us having to do this several more times is overwhelming so we’ll just take it one day at a time.

I don’t know what God has planned but I know he is preparing us all for something ahead. It is scary and exciting at the same time because he always has plans that are so much bigger than we could ever expect.

By Susie @ Kirby's Kabin Blog

Susie is a slightly crazy, homeschooling, square dancing Momma with a houseful of babies (10 to be exact), and a whole lot of Jesus. She gave birth to seven of those babies (and she has the stretch marks ans scars to prove it) and then God chose her to be Momma to three more who she refers to as her 'Unexpected Blessings'. Having a large family means she has heard just about all of the large family jokes... you know like 'You know how that happens, right', or 'Don't you have a TV?'. Many people believe that she must be related to Mother Teresa but she insists she isn't anywhere close to a Saint although she does appreciate as many prayers as she can get sent her way. Even though four of her babies have flown the coop, her life stays really busy. Most days start out early with a cup of her favorite Dandy Morning Coffee and a quick Trim Healthy Mama breakfast before the kids get up and the crazy starts. She looks at every day as an adventure where the unexpected keeps her on her toes. In the rare moment that she finds a little quiet time, you can usually find her snuggled up with a good book, browsing a thrift store, sewing a new outfit, or getting a little 'Pin Happy' with To-Do projects on Pinterest. She is extremely passionate about her family, cooking, being a keeper of the home, and square dancing. She is also on a mission to help others to make healthier changes in their lives, one family at a time. She strives to live by the Proverbs 31 model but she also acknowledges that she is not perfect and is just a sinner saved by grace. Kirby's Kabin Blog began as a way to share her family's journey with family and friends as they've gone through so many life changes. After getting so many questions about parenting, homeschooling, and recipe requests she realized that she could really use her blog as a way to help others out there who may be struggling with their roles as a mother, especially the single mothers who may feel like they are all alone on their journey. This blog has become a journal of sorts and a way for her to help inspire and provide encouragement to others. She enjoys looking back over old posts to see how far they have come and to motivate her when times seem tough. On Kirby's Kabin Blog, she talks about their life's journey through the adoption process, how their faith in God got them through some difficult and challenging times, as well as the many ups and downs they have faced with a large family and special needs (ADHD, ODD, and Down's Syndrome to name a few). Susie also shares the products that they use in their home as well as tips and tricks that she uses to keep her family running as smoothly and efficiently as possible. Do you ever feel like your juggling so many things that you can't think straight? She has often felt the same way but has come up with some simple routines and schedules that help everyone to stay on track and I think they just might help you too! Under the 'Keeper of the Home' tab, you can find various tips, tricks, and hints to get your house up and running on autopilot. That's not been such an easy task for them since they downsized to a 600 ft square cabin but somehow they make it work and she loves sharing some of the helpful tips and tricks that they've learned along the way. One question they get a lot is about how they feed this army. It's not always an easy task and trying to eat healthily can get quite expensive so she is always looking for ways to save money and stick to their grocery budget. Under the 'Kirby's Kitchen' section they have a ton of their favorite recipes like Daddy Can't Wait Casserole, Hoe Cakes (one of the most viewed posts on the blog), freezer cooking, and meal plans along with their family's 'Trim Healthy Mama' plan ideas and successes. If you haven't heard of the 'Trim Healthy Mama' plan you should definitely check it out today! Sometimes eating healthy does mean she spends a little extra on groceries so she finds other areas to cut expenses. One way they have found is with their cleaning supplies and health products. She has always been concerned about the chemicals (Did you know that the average household contains about 62 toxic chemicals?) and toxins that are in many household cleaners so when she found a company where she could buy the majority of the green cleaning products that they use she jumped at the chance to become an Independent Sales Consultant with Norwex. Direct sales is really not her thing as she really is a bit of an introvert so if you look under the tab 'Susie's Chem Free Zone', you will find information about some of the natural products that they use around their house as they try to create a safe haven for their family. If you find that you are interested in the products, feel free to check out her personal web page (susiekirby.norwex.biz) or contact her to see if she can set up a 'virtual party' for you and your friends. Susie has been homeschooling for several years now and although she does not consider herself to be an expert but she has found a variety of products and services that have helped to make their homeschooling journey a unique experience. You can find links to these products under the 'Kirby's Kid's' tab. Susie and her kids have had a ton of fun reading through the Little House on the Prairie series and she has posted some of the unit studies that they have put together for the different books. The family has been trying to incorporate some of the old fashioned morals and values into their everyday lives. As if juggling kids, home, and a home business weren't enough, the family also enjoys square dancing twice a week or more. Mr. Awesome and his dad happen to be the only father/son caller duo in Florida and are pretty well known in these parts. She also manages a couple of other facebook and blog pages for a couple of the local square dance clubs. The 'Kirby's Korner' tab is where they post links to their square dancing activities which is one of the things they do as a family. Susie loves to dress up in her fancy dance outfits and thinks the fluffier the petticoat the better. She also loves to take selfies of her various square dance outfits and share them with others. Did I mention that she met Mr. Awesome through square dancing? You'll have to poke around the blog to see if you can find that story somewhere. If you just want to find a list of the affiliate/referral programs that the family works with you can click on the 'Affiliate Links' tab. These links help to support their blog, their family, and their homeschooling mission at no extra cost to you. If you like to chuckle about the crazy things kids do or the crazy things they do on a daily basis then you really should follow their blog. They also have accounts on Facebook (@kirbyskabinblog and @susieschemfreezone) as well as on Instagram (@kirbyzkorner and @susieschemfreezone). In July of 2020, amidst the COVID-19 pandemic, Susie and Shane welcomed their youngest daughter, Shyanne, into the family. Shyanne has a dual diagnosis of Down Syndrome and Dandy-Walker Malformation w/hydrocephalus. She has gained many followers and supporters from around the world who have joined together to be prayer warriors for this special little girl.

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