I know we started this blog a bit ago and then just kind of left it…. there have been several instances where I’ve tried to sit down and post but just never had the chance too.
Well here I am writing this post not because I have a chance but it because I can’t sleep. It’s been a week since we got clean bill of health for Shyanne and then everything came crashing down very next day.
Friday morning we got the blood results which showed new blast cells. She had been diagnosed with TMD in the NICU so this new finding was quite concerning. After speaking with one of her doctors it was decided that we needed to be admitted for further testing.
I’ve been a blubbering, crying mess since last Friday and honestly I don’t know when I’ll stop because I have absolutely no control over this waterfall of tears right now. You can ask me my address and I won’t make it past the street name before my voice fails me and the waterworks start… there’s no rhyme or reason to it. You’d think I would have depleted the reservoir by now but it’s still going strong… even as I type.
Our friends and have family have been AMAZING… taking the other kiddos for the weekend so we could focus on our precious baby, treating us to a pizza night, plenty of ready cooked meals, babysitting, and did I mention what wonderful prayer warriors they have been? You can feel it when they pray and I’m so thankful that they are surrounding us in a blanket of prayers right now
Today has been so hard from being admitted to meeting with the doctors and multiple attempts at getting an IV for little miss. Discussing our options wasn’t that difficult because either you treat or you don’t…. you give her a chance at life or you don’t. She has fought so hard and done so well we never imagined she’d have to face this.
Even with treatment there is a chance that it might not work… something we just don’t even want to discuss or say out loud but it’s there looming over us like a big black cloud.
Treatment isn’t a walk in the park either and it kills me to know what she will be going through but I plan to be right here by her side as much as I can. Some of the medications cause nausea which they can treat, others can cause heart complications, mouth sores, and/or serious allergic reactions. The next few days are going to be even more nerve wracking as we watch closely for any signs that something may be wrong.
Last night was a restless night and I spent the whole night packing and repacking our stuff for the hospital. I also printed off packets of school work so they can get through this year.
Now I’m typing as I fight off the sleep. I think I might jump in the shower before I attempt to sleep a bit… I can escape in the steam and let the hot water wash away some of this mountain of stress that is surrounding me.
Please keep us in your thoughts and prayers. There are a couple of fundraisers going that you can see on FB but I’ll try to get the links posted soon.
https://gofund.me/0855a1f6
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By Susie @ Kirby's Kabin Blog
Susie is a slightly crazy, homeschooling, square dancing Momma with a houseful of babies (10 to be exact), and a whole lot of Jesus. She gave birth to seven of those babies (and she has the stretch marks ans scars to prove it) and then God chose her to be Momma to three more who she refers to as her 'Unexpected Blessings'.
Having a large family means she has heard just about all of the large family jokes... you know like 'You know how that happens, right', or 'Don't you have a TV?'. Many people believe that she must be related to Mother Teresa but she insists she isn't anywhere close to a Saint although she does appreciate as many prayers as she can get sent her way.
Even though four of her babies have flown the coop, her life stays really busy. Most days start out early with a cup of her favorite Dandy Morning Coffee and a quick Trim Healthy Mama breakfast before the kids get up and the crazy starts. She looks at every day as an adventure where the unexpected keeps her on her toes. In the rare moment that she finds a little quiet time, you can usually find her snuggled up with a good book, browsing a thrift store, sewing a new outfit, or getting a little 'Pin Happy' with To-Do projects on Pinterest.
She is extremely passionate about her family, cooking, being a keeper of the home, and square dancing. She is also on a mission to help others to make healthier changes in their lives, one family at a time. She strives to live by the Proverbs 31 model but she also acknowledges that she is not perfect and is just a sinner saved by grace.
Kirby's Kabin Blog began as a way to share her family's journey with family and friends as they've gone through so many life changes. After getting so many questions about parenting, homeschooling, and recipe requests she realized that she could really use her blog as a way to help others out there who may be struggling with their roles as a mother, especially the single mothers who may feel like they are all alone on their journey. This blog has become a journal of sorts and a way for her to help inspire and provide encouragement to others. She enjoys looking back over old posts to see how far they have come and to motivate her when times seem tough.
On Kirby's Kabin Blog, she talks about their life's journey through the adoption process, how their faith in God got them through some difficult and challenging times, as well as the many ups and downs they have faced with a large family and special needs (ADHD, ODD, and Down's Syndrome to name a few). Susie also shares the products that they use in their home as well as tips and tricks that she uses to keep her family running as smoothly and efficiently as possible.
Do you ever feel like your juggling so many things that you can't think straight? She has often felt the same way but has come up with some simple routines and schedules that help everyone to stay on track and I think they just might help you too!
Under the 'Keeper of the Home' tab, you can find various tips, tricks, and hints to get your house up and running on autopilot. That's not been such an easy task for them since they downsized to a 600 ft square cabin but somehow they make it work and she loves sharing some of the helpful tips and tricks that they've learned along the way.
One question they get a lot is about how they feed this army. It's not always an easy task and trying to eat healthily can get quite expensive so she is always looking for ways to save money and stick to their grocery budget.
Under the 'Kirby's Kitchen' section they have a ton of their favorite recipes like Daddy Can't Wait Casserole, Hoe Cakes (one of the most viewed posts on the blog), freezer cooking, and meal plans along with their family's 'Trim Healthy Mama' plan ideas and successes. If you haven't heard of the 'Trim Healthy Mama' plan you should definitely check it out today!
Sometimes eating healthy does mean she spends a little extra on groceries so she finds other areas to cut expenses. One way they have found is with their cleaning supplies and health products. She has always been concerned about the chemicals (Did you know that the average household contains about 62 toxic chemicals?) and toxins that are in many household cleaners so when she found a company where she could buy the majority of the green cleaning products that they use she jumped at the chance to become an Independent Sales Consultant with Norwex.
Direct sales is really not her thing as she really is a bit of an introvert so if you look under the tab 'Susie's Chem Free Zone', you will find information about some of the natural products that they use around their house as they try to create a safe haven for their family. If you find that you are interested in the products, feel free to check out her personal web page (susiekirby.norwex.biz) or contact her to see if she can set up a 'virtual party' for you and your friends.
Susie has been homeschooling for several years now and although she does not consider herself to be an expert but she has found a variety of products and services that have helped to make their homeschooling journey a unique experience. You can find links to these products under the 'Kirby's Kid's' tab.
Susie and her kids have had a ton of fun reading through the Little House on the Prairie series and she has posted some of the unit studies that they have put together for the different books. The family has been trying to incorporate some of the old fashioned morals and values into their everyday lives.
As if juggling kids, home, and a home business weren't enough, the family also enjoys square dancing twice a week or more. Mr. Awesome and his dad happen to be the only father/son caller duo in Florida and are pretty well known in these parts. She also manages a couple of other facebook and blog pages for a couple of the local square dance clubs.
The 'Kirby's Korner' tab is where they post links to their square dancing activities which is one of the things they do as a family. Susie loves to dress up in her fancy dance outfits and thinks the fluffier the petticoat the better. She also loves to take selfies of her various square dance outfits and share them with others. Did I mention that she met Mr. Awesome through square dancing? You'll have to poke around the blog to see if you can find that story somewhere.
If you just want to find a list of the affiliate/referral programs that the family works with you can click on the 'Affiliate Links' tab. These links help to support their blog, their family, and their homeschooling mission at no extra cost to you.
If you like to chuckle about the crazy things kids do or the crazy things they do on a daily basis then you really should follow their blog. They also have accounts on Facebook (@kirbyskabinblog and @susieschemfreezone) as well as on Instagram (@kirbyzkorner and @susieschemfreezone).
In July of 2020, amidst the COVID-19 pandemic, Susie and Shane welcomed their youngest daughter, Shyanne, into the family. Shyanne has a dual diagnosis of Down Syndrome and Dandy-Walker Malformation w/hydrocephalus. She has gained many followers and supporters from around the world who have joined together to be prayer warriors for this special little girl.
View all of Susie @ Kirby's Kabin Blog's posts.
Sweet Shyanne: The little girl who could 
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